Privacy policy Ecraid network management system
Ecraid advances clinical research in the field of infectious diseases by establishing a long-term, financially self-sustainable, clinical research network in Europe. Part of Ecraid, CLIN-Net and LAB-Net coordinate pan-European networks of hospitals and laboratories, respectively. This privacy policy describes our practices on how we process (e.g. collect, store and use) your work-related* contact and organisation information.
What personal data do we collect?
Work-related contact and organisation details provided are collected and registered in the Ecraid network management system. We may process the following information: contact information, organisation details, trial experience, medical specialty, training etc.
For what purposes is this data collected?
Ecraid may use your work-related contact and organisation details to:
- Evaluate the capability of your organisation to participate in studies
- Invite you to participate in studies, training or events
- Inform you about news, events and activities
- Evaluate the need for capacity building and training
- For publications and reports
- Ask for your expert advice on the feasibility of studies
How will your data be protected?
Ecraid complies with its obligations under the European General Data Protection Regulation (GDPR). Data can be shared internally and with third parties working with or on behalf of Ecraid or contracted by it in accordance with the purpose(s) for which the data were originally collected. Should a third party be located outside of the European Union, data will only be shared with them if they comply with GDPR requirements.
How long do we keep your personal data?
We will only retain your data for as long as necessary to fulfil the purpose for which it was collected or to comply with legal or regulatory requirements.
Your rights over your information
You have the following rights with respect to your personal data:
- To request a copy of your personal data
- To request a correction of your personal data if it is found to be inaccurate or out of date
- To request your personal data to be erased (note: this is limited when participating in clinical trials in order for the research to be reliable and accurate)
- To request a restriction is placed on further processing of your data
- To object to the processing of your personal data
If you have a question about the processing of your personal data or if you want make a request to erase your personal data, please send an email to privacy@ecraid.eu. In case you participated in clinical trials, your name and organisation will remain in the system, other personal information will be removed (e.g. email address, phone number).
Please note that we may periodically modify, add, remove or otherwise update this privacy policy.
*In principle we only ask for your work-related contact details (e.g. email address, phone number), but if you provide your personal contact details, this will be stored in the database.